Saturday, April 30, 2011
Me: I'll fix your hair really cute today if you want...like a princess braid or something. Solana: Ok!
Me: How do you want your hair?
Solana: In a headband.
Me: Oh. Well, I don't need to do that. You can put a headband in by yourself.
Solana: Yeah, that's true. But thanks for offering Mommy. That was very generous of you.
4/6/11 Solana's helping me plant seeds in the garden. Every time I drop a seed into a hole she makes this weird spitting sound. I ask (kind of annoyed), "What is that weird sound you keep making?" She replies, "I was trying to beat box." I'm slightly confused but also feel kind of bad for my tone. "Oh...Of course...Great Beat Boxing!"
Wednesday, April 27, 2011
I have some cleaning to catch up on and some birthday preparation (today is Solana's 6th birthday!) so I'll have to do some catch-up blogging in the coming week.
Thursday, April 21, 2011
Monday, April 18, 2011
Wednesday, April 13, 2011
I love cooking with onions. I buy a bag almost every week. But chopping onions makes me cry. Not just harmless tears delicately sliding down my cheek. I'm talking streams of tears. And my eyes burn as though I just mistook the bottle of Tabasco for Visine. It's quite uncomfortable. Not to mention dangerous. Wielding a chef's knife while virtually blind - not cool.
I recently learned a new trick to protect myself from those vicious (but delicious) onions. These are Solana's swimming goggles. I'll graduate to my old ski goggles as soon as I find them. I may look silly but this actually works!
Look Mommy! No tears! :-)
Tuesday, April 12, 2011
Baby steps. We're progressing ever so slowly and this does not surprise me one bit. That's been Chloe's style from the beginning. She's always moving forward - you just have to look very closely to notice :-)
This is certainly how it's been with eating. Chloe will eat absolutely anything I offer her. Fruit. Vegetable. Meat. Cheese. Tofu. Bland. Strong Flavors. Spicy. You name it. She'll eat it. That is....as long as it's pureed. I've been trying to offer her new stuff but I've also been kind of lazy about pushing the issue. I figure she'll get there...eventually.
Then a neighbor brought her 5 year old daughter over for a play date with Solana. Her daughter is also vision impaired and will only eat crunchy foods. Nothing mushy. Period. No mac-n-cheese. No mashed potatoes. No grilled cheese. Nothing. She mentioned an online support group that she reads and recently noted several parents with school-age kids who only eat pureed food! Goodness gracious! As much as I love making baby food; I really don't want to be doing it when Chloe's in the 3rd grade! Boy did that light a fire under my bootie!
Here's the good news. Although she's still refusing outright slimy or mushy finger foods (diced banana or pear, for example) she's recently accepted a few foods that had me just about jumping for joy.
-Chopped up pasta with bolognese sauce (I made the bolognese and chopped up the ground beef/pork really small.) This is the first ground meat she's eaten that wasn't pureed! -Scrambled eggs! She fed herself two bites by hand! No gagging or pushing it out with her tongue. She actually chewed (gummed) it up and swallowed! Yippeeee! Then, to top it off, I spoon fed her the rest of the egg mixed up with roasted root vegetable puree. She ate the entire egg! This was a huge deal. I've offered her scrambled eggs several times before. She's never tolerated one little bit.
-Mexican-style chicken and rice.
-She also fed herself a spoonful of peanut butter. (Embarrassing admission - I'd never let her feed herself with the spoon before.)
-Halfway through this entry I stopped for lunch and made Chloe this recipe from a friend's blog. I chopped up some leftover pasta, cooked it in olive oil with some crushed garlic, broke an egg into the mix, scrambled, and finally mixed in a bunch of freshly grated parmasiano reggiano. She actually ate quite a bit! And the cool thing was that there was no "sauce" (ie. pureed vegetable) on it. It took forever and I think her little jaw is unaccustomed to chewing. After 30 minutes I warmed up a cube of pureed ranchero beans and added them to the mix and she finished it off more easily. All of these foods require chewing and she's willing to do it now. This is pretty cool.
Scrambled eggs with pureed root vegetables. Look at how chunky that is! Her faces were cracking me up. These were smiles, by the way. She really was enjoying it. I swear. "Look Mommy! I just ate two bites of scrambled egg!" You can actually see some of it in her mouth :-) (Ignore the filthy bib. This is the ONLY time I've ever put a dirty bib on her. Hehehe)
A peanut allergy's nightmare.
Wednesday, April 6, 2011
Tuesday, April 5, 2011
Dr. Bloom said he was just thinking a lot about her and probably being neurotic. I said, "Well, we'd rather make the trip again and know for sure." To which he replied, "Yeah, I figured. I know you well enough to know..." and then trailed off as he was writing in her file.
I'll complete the sentence for him: I know you well enough to know...
- that you're also obsessive about Chloe's well-being and wouldn't mind coming in again for a double-check.
- not to mess with you because you'd pitch a fit if I missed something.
- that you'd probably go home and do some internet research; then call me back with a million questions, anyway, if I didn't ask you to come back.
Whatever it was he was about to say. I'll take it as a compliment. Very thankful for double-checking and for a good report!
I noticed Chloe's right eye turning in Thursday afternoon. Her RIGHT eye. That's her good eye. This bothered me but I decided to wait until Friday before freaking out. Maybe she's just tired.... Friday morning her right eye was still crossed to I made an appointment for Monday.
I took her in yesterday and the doctor was happy I brought her in. We have overpatched. He was surprised and happy that Chloe functions just as well with the patch as without. This either means she's getting really good at functioning blind or her vision is getting better in her left eye. This is unusual but, like he said before, most parents aren't able to patch as well as me. We're to stop patching and not worry. Her eye will go back. He wants me to watch her crossing and head turning until the surgery and report to him.
I went home satisfied. Happy.
Then I got a call from the technician. "Dr. Bloom has been thinking about Chloe some more and wants you to bring her back tomorrow. Do you have dilating drops at home? No? Ok. I'll call in a prescription to your pharmacy. One drop before bed and one drop in the morning before you come in. He was thinking about her laser surgery (she had ROP surgery in both eyes when she was still in the NICU) and decided to get a good look at her retina."
Now I'm nervous. This is her GOOD eye!!! I'm glad he kept thinking about her and wants to get a good look. I wish there wasn't any reason to do that. I hope we get good news today. I'm scared we may not...